S4E6: The Reality for a Chronically Ill Neurodivergent- Part Two
I Am Not My Pain with Melissa Adams featuring Aston Martinez
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S4E5: The Reality for a Chronically Ill Neurodivergent- Part One
I Am Not My Pain with Melissa Adams featuring Aston Martinez
The Impact of Healthcare Pricing & Transparency on the Rare Disease Community
Imagine this: you’ve just arrived back home from running errands and decide to check the mail, whereupon you find that you’ve received an outrageous bill for your brief visit to the ER recently. Sound familiar? Almost every adult has faced this at some point, whether it be for themselves or a family member, but it can be especially common and distressing among those in the rare disease community.
Why does this happen? What’s being done about it, and what more needs to be done?
Why does this happen? What’s being done about it, and what more needs to be done?
Emergency Preparedness: Creating a Disability-Inclusive Emergency Plan
Emergency preparedness is an important topic for anyone - your average person should have a set plan as to what to do during a natural or manmade disaster, what to take if ordered to evacuate, and have a backup plan for sheltering in place. However, people with chronic health conditions need an emergency preparedness strategy that maps what to do during a flare, what to take to the emergency room, and where to store backup medication and an extra set of clothes just in case. The truth of the mat
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
In just the last few years, there’s been an increasing amount of attention drawn to Diversity, Equity, and Inclusion (DEI) initiatives in workplaces and communities – or, more specifically, the lack of those initiatives.
Some of the most well-known examples include such corporations and organizations as Starbucks, Sephora, and even the City of Seattle. Much of this was exacerbated by the emergence of a global pandemic, forcing many to rethink work environments and completely audit their busines
Some of the most well-known examples include such corporations and organizations as Starbucks, Sephora, and even the City of Seattle. Much of this was exacerbated by the emergence of a global pandemic, forcing many to rethink work environments and completely audit their busines
3 Candid Questions episode 5 | Living with Rare Diseases
This is a deep dive with community activist Aston Martinez, who shares her very personal experiences and extensive knowledge about living with rare diseases and the impact that has on millions of people around the globe.
About Sabrina Lindner:
I am a life coach supporting humans from all around the globe in achieving growth, self awareness, joy and fulfilment. My clients turn their dreams into their reality and begin a journey of leadership in life and healing from old hurt that holds them back.
I deal with matters of the heart, body and mind because they are all connected. So if you are looking for self development, self improvement and true empowerment, reach out: hello@sabrinalindnercoach.com
Book a free exploration call here: https://go.oncehub.com/exploring
Or let us connect on socials...
LinkedIn: https://www.linkedin.com/in/sabrina-lindner-lifecoach/
Instagram Profile Link: https://www.instagram.com/sabrinalindnercoach/
Facebook Profile Link: https://www.facebook.com/Sabrinalindnerlifecoach
About Sabrina Lindner:
I am a life coach supporting humans from all around the globe in achieving growth, self awareness, joy and fulfilment. My clients turn their dreams into their reality and begin a journey of leadership in life and healing from old hurt that holds them back.
I deal with matters of the heart, body and mind because they are all connected. So if you are looking for self development, self improvement and true empowerment, reach out: hello@sabrinalindnercoach.com
Book a free exploration call here: https://go.oncehub.com/exploring
Or let us connect on socials...
LinkedIn: https://www.linkedin.com/in/sabrina-lindner-lifecoach/
Instagram Profile Link: https://www.instagram.com/sabrinalindnercoach/
Facebook Profile Link: https://www.facebook.com/Sabrinalindnerlifecoach
The Disability Spectrum & Why It Matters
Disability is often seen as a binary “check yes or no” matter - either you’re disabled or you’re not. This simply isn’t the case, and recognizing that there are so many different variations of disabilities - even for one individual from day to day - is an important step toward cultivating a world with true inclusivity, equity, and accessibility.
Before we move on, I’d like to introduce you to the disability equation posed by Sarah Horton and Whitney Quesenbery in their book, “A Web for Everyone
Before we move on, I’d like to introduce you to the disability equation posed by Sarah Horton and Whitney Quesenbery in their book, “A Web for Everyone
The Lives You Save (Fiction)
The sun was sitting low, cresting atop the surrounding city buildings. The light it issued shone dimly through darkly tinted windows, creating an ambiance you could only find at a hole-in-the-wall coffee shop such as Allison’s Espresso Express. The small building smelled strongly of exotic coffee blends and a variety of toasted sandwiches. The few customers were either mumbling in hushed voices amongst each other or clicking away on cell phones and laptops. Colleen Caraway sipped a black coffee
Through the Eyes of the Owl (Fiction)
"Remind me again why I'm awake so early in the middle of nowhere?" Damon's grouchy voice cut through the thick darkness of the Airbnb cabin he and his wife, Avery, had rented for a week-long getaway. It was the third day of their trip, and Avery had insisted that they wake up before dawn to see the sunrise by the lake. He yawned, feeling the humid air coat his lungs as he ran his fingers through his thick blonde beard.
About Aston Martinez
I’m Aston Martinez. I just turned 26 in July, and I’m a writer for Habit Nest! I started with the team in June 2020 and I have loved every second of it already!
“It has been said that something as small as the flutter of a butterfly’s wing can ultimately cause a typhoon halfway around the world.” You might recognize this quote often used in reference to the Butterfly Effect. So many things in life had to align to lead me to this moment.
It has been a wild ride, but I’m so thankful for it! Wher
“It has been said that something as small as the flutter of a butterfly’s wing can ultimately cause a typhoon halfway around the world.” You might recognize this quote often used in reference to the Butterfly Effect. So many things in life had to align to lead me to this moment.
It has been a wild ride, but I’m so thankful for it! Wher
https://phoenixes-habitnest.vercel.app/the-lore
You can feel it, can't you?
The pulse of energy deep in your core? The feeling that something inside you has long been caged and is ready to break free?
The pulse of energy deep in your core? The feeling that something inside you has long been caged and is ready to break free?
The Harms of Being Labeled a ‘Difficult’ Patient
Imagine you’ve just been handed a complete copy of your medical records. As you’re skimming it, you find that one of your physicians left a note in your chart stating that you were difficult and non-compliant during one of your appointments. “That can’t be right,” you think as you try to remember what might have gone wrong during that appointment. There was that one time you refused a medication you didn’t feel comfortable taking, or maybe it was the time that you cried because the doctor sugges
Are Mobile Healthcare Apps Jeopardizing Your Privacy?
For many people, it doesn’t come as much of a surprise that any online technology carries massive risks to our privacy. In fact, it has long been a topic covered in documentaries, debates, and even fictional movies. The data our phones collect through various apps and social media sites tracks hundreds of different data points that are then analyzed or sold to various marketing companies in order for them to better understand you – at least enough to tailor their ads to you for maximum effective
Dating & Healthy Relationships for People with Disabilities
Many people mistakenly believe that people with disabilities don’t desire sex and relationships, or that they are entirely unable to do so. This is, of course, a complete myth. People living with disabilities are human beings with human desires, needs, and preferences. Living with a disability does not remove the person from the very human elements of desiring a healthy social life.
Dating and developing healthy relationships can be quite the challenge in general. Just ask anyone, dating and fi
Dating and developing healthy relationships can be quite the challenge in general. Just ask anyone, dating and fi
Value Your Rare
As members of the rare disease community, it's easy to feel isolated, unheard, invisible and exploited. But the truth is: All around the world, the people of the rare disease community have united and as a result, we are no longer isolated, ignored, or invisible. It is time that we recognize the value of our collective lived experiences and demand stakeholdership throughout the rare disease ecosystem. The rare disease community has awakened; and through this awakening the people around the world
When I Experienced a Clear-Cut Case of Gender Bias in the ER
A couple of weeks ago, I had to take my husband to the ER. He had been coughing for about a week, but he woke up that day with a high fever, chest pain and low oxygen levels, so I persuaded him to get checked out. I followed the triage nurses to the ER room my husband would be examined in, and my eyes drifted to the small whiteboard on the wall that lists the names of the attending doctor and nurses. I sighed and locked eyes with my husband, who knew exactly why I seemed troubled without me need
When My Epilepsy Didn't Look Like Epilepsy
The day my husband told me that I looked as if I was convulsing in my sleep, I thought nothing of it. Surely I was just having a bad dream and flailing around. I noticed I was much more groggy that morning and was having difficulty keeping my eyes open at work. Again, I attributed that to possibly not sleeping well. The conversation went unmentioned again.
I began to notice some strange issues I was having during the day. While on the phone at work, I would accidentally slur my words or I would
I began to notice some strange issues I was having during the day. While on the phone at work, I would accidentally slur my words or I would
Why the Ignorance of Others Inspires Me to Share About My Illness
Caregiving can be a rewarding experience, but it can also be stressful and challenging at times — and that’s OK! That’s why we’ve created this toolkit, so you can learn more about the ins and outs of caregiving and discover helpful resources you can utilize along your caregiving journey. Take what you need, and share it with others too. Here’s what’s included in The Mighty’s Digital Toolkit for Caregivers: A caregiving binder, complete with worksheets to help you better organize important inform
My Frustrations With the Gender Bias I've Experienced in Healthcare
Caregiving can be a rewarding experience, but it can also be stressful and challenging at times — and that’s OK! That’s why we’ve created this toolkit, so you can learn more about the ins and outs of caregiving and discover helpful resources you can utilize along your caregiving journey. Take what you need, and share it with others too. Here’s what’s included in The Mighty’s Digital Toolkit for Caregivers: A caregiving binder, complete with worksheets to help you better organize important inform
5 Types of Doctors You Encounter When You Live With Chronic Illness
Caregiving can be a rewarding experience, but it can also be stressful and challenging at times — and that’s OK! That’s why we’ve created this toolkit, so you can learn more about the ins and outs of caregiving and discover helpful resources you can utilize along your caregiving journey. Take what you need, and share it with others too. Here’s what’s included in The Mighty’s Digital Toolkit for Caregivers: A caregiving binder, complete with worksheets to help you better organize important inform
When My Doctor Told My Husband My Pain 'Must Be Psychological in Nature'
Caregiving can be a rewarding experience, but it can also be stressful and challenging at times — and that’s OK! That’s why we’ve created this toolkit, so you can learn more about the ins and outs of caregiving and discover helpful resources you can utilize along your caregiving journey. Take what you need, and share it with others too. Here’s what’s included in The Mighty’s Digital Toolkit for Caregivers: A caregiving binder, complete with worksheets to help you better organize important inform
